Pharmafile Logo

Cuttsy+Cuttsy and ISPEP highlight key patient insights in new clinical trials report

Explore how Cuttsy+Cuttsy and ISPEP are spotlighting patient engagement in clinical trials through a new global report.

Upcoming report announcement

Cuttsy+Cuttsy, the original patient communications agency, in partnership with the International Society for Patient Engagement Professionals (ISPEP), is proud to announce the upcoming release of their latest report, offering a 360-degree view into patient engagement in clinical trials, both at recruitment stage and during their time participating in a trial.

Based on extensive global research with over 700 clinical trial patients, as well as insights from the specialist Cuttsy+Cuttsy team alongside industry leaders, the report provides a comprehensive analysis of patient experiences. It sheds light on their motivations, emotional and psychological responses, effectiveness of support materials, and need for clear communication during clinical trials. By gathering feedback from an international audience, the findings offer actionable strategies to enhance patient satisfaction, trial completion rates, and overall study success on a global stage.

“Too often, the patient voice is acknowledged in theory but overlooked in practice,” said Caroline Benson, Co-Founder of Cuttsy+Cuttsy. “This report is about more than metrics; it’s about truly listening to what patients experience and need. When we design trials around real people, not just protocols, everyone wins.”

Alongside ISPEP’s aim to amplify the patient voice across medicine development, this report exemplifies Cuttsy+Cuttsy’s mission to empower the healthcare industry with data-driven tools that advance patient-centric approaches to clinical research.

Request a copy of the new report.

This content was provided by Cuttsy + Cuttsy

Company Details

 Latest Content from  Cuttsy + Cuttsy 

Invited, but not equipped: patient involvement needs more than an open door

Explore how pharma can help patients and patient organisations prepare for meaningful involvement in EU HTA without shaping their contribution.

The outcomes are already chosen. So when can patients really shape them?

Explore why involving patients early in Joint Scientific Consultations is critical to shaping the outcomes measured in clinical trials.

Long-term clinical trial engagement is a behavioural challenge – not just an informational one

Explore why long-term clinical trial engagement is a behavioural challenge, showing how proactive support from site teams can help participants stay connected, confident and committed throughout a study.

Patients are telling the truth — just not to you

Patients are often most honest outside the clinic—revealing vital insights that can help clinical trial teams build trust, improve participation and collect better data.

When what matters to patients is hard to measure

Patient-relevant outcomes sit at the heart of the EU HTA reforms, but ensuring they reflect lived experience requires you to look beyond what traditional clinical endpoints measure.

Permission to pause: making treatment breaks part of the cancer care conversation

Exploring how empathetic, patient-centred communication can make planned treatment breaks easier to discuss as part of cancer care.

A seat at the table: what the EU HTA reforms really ask of patient involvement

The EU HTA reforms give patients a formal role in assessing new medicines, but meaningful involvement requires more than simply offering them a seat at the table.

Why faster trials make participant understanding more important than ever

As clinical trials accelerate, clear, accessible consent is essential to help participants understand, engage with and remain in a study.

Older trial participants reject bad design, not technology

Older trial participants aren’t rejecting digital technology — they’re rejecting poorly designed, inaccessible experiences that make participation harder.

5 key takeaways from the Patient Centricity and Engagement Conference

Key takeaways from the Patient Centricity and Engagement conference, exploring how trust, inclusion and meaningful partnership can help turn patient engagement from intention into action.