Pharmafile Logo

Embracing the Patient Voice Within Publications

September 5, 2023 |  

This whitepaper will explore multidisciplinary perspectives on how we can better engage patient communities in publications to optimize the value of their contributions, while navigating any uncertainties and reluctance from internal and external stakeholders.

The biopharmaceutical sector continues to recognize the value of integrating the voice of the patient community into its activities.

Despite growing recognition of the importance of patient partnership within publications, uncertainty remains regarding how best to involve patients and where in the process this involvement should happen. Furthermore, although many of our colleagues working in Medical Affairs and publications have established the goal of engaging patients in publications, possibly as authors, their own internal guidance on publication development may create roadblocks. Compliance and regulatory concerns can limit opportunities to partner with patient communities, and the occasional reluctance of physician authors to include patients as co-authors further exacerbates the situation. Additional barriers arise from the general uncertainty in the scientific communications community as to how and when to engage patients in an appropriate manner that ensures a positive experience and recognizes the resource challenges of advocacy groups.

This paper will explore multidisciplinary perspectives on how we can better engage patient communities in publications to optimize the value of their contributions, while navigating any uncertainties and reluctance from internal and external stakeholders. We recognize that we are all learning together, with the shared goal of evolving our practices to fully embrace the voice of the patient while adhering to publication best practices and compliance. We welcome and encourage feedback from our industry colleagues to further refine our approaches.

This article was originally published in our latest whitepaper “Embracing the Patient Voice Within Publications”. To learn more about the multidisciplinary perspectives on how to better engage patient communities in publications, read the full whitepaper.

This content was provided by OPEN Health

Company Details

 Latest Content from  OPEN Health 

OPEN Health Appoints Matt D’Auria as Chief Executive Officer to Drive Innovation and Growth

OPEN Health Group is pleased to announce the appointment of Matt D’Auria as its new Chief Executive Officer (CEO). Based in the US, Matt brings more than 25 years of...

OPEN Health Appoints David Sakadelis as Chief Technology Officer

OPEN Health is pleased to announce the appointment of David Sakadelis as Chief Technology Officer. In this role, David will be responsible for enhancing our services through technology-enabled solutions for...

The Potential Impact of the New Presidential Administration on the Future of the Inflation Reduction Act and Broader Healthcare Policy

Discover the key takeaways from OPEN Health’s latest whitepaper: "The Potential Impact of the New Presidential Administration on the Future of the Inflation Reduction Act and Broader Healthcare Policy."

OPEN Health Presents First Collection of Research Backed by Scientific Buyout Fund to Foster Research and Development

OPEN Health is excited to announce the upcoming presentation of a collection of research supported by its Scientific Buyout Program. This initiative empowers our team members to dedicate time toward...

OPEN Health and fusion announce partnership to deliver AI-powered healthcare communications

OPEN Health, a pre-eminent global provider of scientific communications, HEOR and market access, patient engagement, and consulting, today announced a partnership with fusion, an innovative artificial intelligence (AI) and machine...

OPEN X Health launches to provide data-driven creativity to the pharmaceutical industry

OPEN X Health launches to provide data-driven creativity to the pharmaceutical industry

OPEN Health Appoints Steven Duryee as Chief Operating and Transformation Officer

OPEN Health Appoints Steven Duryee as Chief Operating and Transformation Officer

Unlock possibilities: A Medical Affairs strategy fit for the future

Explore the key areas to include in a Medical Affairs strategy and plan that is fit for the future in our latest whitepaper.

OPEN Health and Nested Knowledge announce strategic research collaboration to leverage AI technologies for evidence synthesis

OPEN Health and Nested Knowledge announce strategic research collaboration to leverage AI technologies for evidence synthesis

OPEN Health unites patient engagement experts to transform the patient experience

OPEN Health, a preeminent global provider of consulting, HEOR and market access, patient engagement, and scientific and creative communications services, is bringing together experts in strategic patient innovation and engagement,...