Pharmafile Logo

Embracing the Patient Voice Within Publications

September 5, 2023 |  

This whitepaper will explore multidisciplinary perspectives on how we can better engage patient communities in publications to optimize the value of their contributions, while navigating any uncertainties and reluctance from internal and external stakeholders.

The biopharmaceutical sector continues to recognize the value of integrating the voice of the patient community into its activities.

Despite growing recognition of the importance of patient partnership within publications, uncertainty remains regarding how best to involve patients and where in the process this involvement should happen. Furthermore, although many of our colleagues working in Medical Affairs and publications have established the goal of engaging patients in publications, possibly as authors, their own internal guidance on publication development may create roadblocks. Compliance and regulatory concerns can limit opportunities to partner with patient communities, and the occasional reluctance of physician authors to include patients as co-authors further exacerbates the situation. Additional barriers arise from the general uncertainty in the scientific communications community as to how and when to engage patients in an appropriate manner that ensures a positive experience and recognizes the resource challenges of advocacy groups.

This paper will explore multidisciplinary perspectives on how we can better engage patient communities in publications to optimize the value of their contributions, while navigating any uncertainties and reluctance from internal and external stakeholders. We recognize that we are all learning together, with the shared goal of evolving our practices to fully embrace the voice of the patient while adhering to publication best practices and compliance. We welcome and encourage feedback from our industry colleagues to further refine our approaches.

This article was originally published in our latest whitepaper “Embracing the Patient Voice Within Publications”. To learn more about the multidisciplinary perspectives on how to better engage patient communities in publications, read the full whitepaper.

This content was provided by OPEN Health

Company Details

 Latest Content from  OPEN Health 

Succeeding with Star Wars Medicine

OPEN Health have published a new white paper demonstrating their commitment to leading the conversation on how effective healthcare communications, and tools that enable them, can lead to faster and...

Three steps I take for stress-free, successful virtual meetings and events

Stacey Osafo, Senior Account Manager, talks about some practical steps she uses for successful virtual meetings and events based on OPEN Health’s vast experience

OPEN Conversations – a webinar series with OPEN Health

OPEN Conversations is a webinar series where experts from OPEN Health answer your questions on pertinent topics in healthcare communications. Available live and on-demand, you can now catch up on...

COVID-19 message to clients from OPEN Health CEO, David Rowley

Dear OPEN Health Clients,I want to highlight to our clients what we’re doing in response to the Coronavirus outbreak to protect our staff, our clients and the community.We’re following the...

The field team are off the road! What should they do next?

Written by Briony Frost , OPEN Health

Mapping the clinical and emotional journey to better understand lived experience

Written by OPEN Health's Chris Hodgson, Neil Rees, Sumira Riaz and Karen Petticrew

13th Edition – Spring MEDAFFAIRS Leaders Forum

OPEN VIE (Amanda Pulfer, Strategic Director and Sergio Diaz, Patient Centred Outcomes Consultant) were delighted to speak at the Medical Affairs Leaders Forum yesterday.