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#ECRD2020

- PMLiVE

EFPIA-EURORDIS joint statement published on patient access to medicines for rare diseases

The statement contains a series of proposals to improve the lives of people living with rare diseases by addressing access barriers to transformative medicines

- PMLiVE

OPEN Health | European Congress on Rare Diseases (ECRD) 2020 in 60 seconds

Gavin Jones, Director or Rare Disease, attends the congress to better understand the viewpoints of patient groups, health systems and payers

OPEN Health

- PMLiVE

OPEN Health at ECRD 2020

Gavin Jones shares his thoughts on why congress is so important at this time and the key sessions he is looking forward to.

OPEN Health

Shire teams up with Microsoft and EURORDIS for rare disease project

Will work to accelerate the time to diagnosis for children

- PMLiVE

Novartis provides multimedia support to Rare Diseases Day

Collaborates with Eurordis on multimedia education campaign

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