Stronger Together: Medscape Education Celebrates Accomplishments in Rare Disease and Anticipates the World Health Assembly Adoption of the Resolution on Rare Diseases
May 20, 2025 | World Health Assembly, rare disease
Medscape Education is proud to be showcasing the power of working together in rare disease education and advocacy by co-hosting a side event at the 78th World Health Assembly in Geneva, Switzerland on May 21, 2025. This event, Milestones & Momentum in Rare Disease, celebrates the accomplishments of rare disease advocacy and anticipates the adoption of a WHA Resolution on Rare Diseases with the aim of making rare diseases a global health priority for equity and inclusion, touching the lives of the more than 300 million people worldwide who live with a rare disease.
The resolution, proposed by the Arab Republic of Egypt and Spain, and co-sponsored by 27 other Member States, calls for nations to commit to a global action plan on rare diseases (GAPRD) which includes “further increasing awareness and education initiatives about rare diseases among healthcare providers, policy-makers and the public in order to promote understanding of and support for affected individuals.”
Co-hosts of the event include Rare Diseases International, the Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease, Sant Joan de Déu Barcelona Hospital, the Harriet Joyce Foundation, the World Federation of Hemophilia, and the Wilhelm Foundation.
In 2021, Medscape Education launched what is now the largest collection of rare disease education for clinicians with their Pathways in Rare Disease learning center. The dedicated learning destination provides free education for the entire care team, and has now featured more than 360 educational activities across more than 100 different rare conditions. Since its launch, the learning center has reached more than 2.3 million healthcare professional learners with accredited education delivered by leading faculty from around the world.
“It has been so rewarding to see the impact that Medscape Rare Disease Education has had on real world diagnosis and management. With the adoption of the resolution at the 78th World Health Assembly, Medscape will be a key player, ready to implement the GAPRD in collaboration with diverse stakeholders, to reduce diagnostic delays and enable earlier access to treatment,” said S. Christy Rohani-Montez, PhD, Rare Disease Education Lead at Medscape Education Global. Dr Rohani-Montez will take part in a panel at the event.
For more information on rare disease education at Medscape Education, please contact S. Christy Rohani-Montez at srohani@medscape.net.
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