Pharmafile Logo

Together Caring for Rare Disease

Medscape Education and Medics4RareDisease are partnering on a Rare Disease Day awareness campaign. The campaign will form part of a series of short programs produced by ITN in collaboration with Genetic Alliance UK.This is a trailer for campaign called, ‘Together Caring for Rare Disease’. The full video will launch on 28th February for Rare Disease Day 2023, the campaign advocates for a pragmatic, “single discipline” approach to rare disease education. The news-style video features Dr Lucy McKay, CEO of Medics4RareDisease; Christy Rohani-Montez, PhD, Medscape Education Global Director of Clinical Strategy; Professor Sir Mark Caulfield, Vice Principal for Health, Queen Mary University of London; and patient advocate Dan Jefferies.Lucy McKay commented, “There is gap in medical education, when it comes to the basics of rare disease. By understanding what a rare disease is and how this rarity impacts patients and families, doctors can transform their patients’ experience.”Medscape is already trailblazing this single discipline approach with a dedicated learning centre, Pathways in Rare Disease, which provides clinicians the education they need to diagnose and care for the estimated 300 to 400 million people worldwide who live with a rare disease.The learning centre contains a variety of tools, resources, patient voices, case challenges, and educational activities that span multiple specialties, all housed in one place, with new content continuously being added.You can learn more about the campaign here.For more information on Medics4RareDiseases please visit www.m4rd.orgYou can learn more about the campaign here.

This content was provided by Medscape Education

Company Details

 Latest Content from  Medscape Education 

Leading with Heart: Why Vulnerability is a Force Multiplier

In a world that often prizes "macho" decisiveness, Dr. Lobna Salem (CMO at Viatris) and Dr. Amrit Ray (Board Chairman and former Pfizer executive) are advocating for a more human...

Cardiology Education in the Age of AI: Join Medscape at ACC 2026

  As medical knowledge now doubles every 73 days, the challenge for cardiology clinicians has shifted from finding information to mastering precision. At the American College of Cardiology (ACC) 65th...

Medscape Launches “Where Public Health Meets Practice” Learning Center to Translate Public Health Strategies into Patient Care

  The Medscape Division of Public Health announced the launch of the "Where Public Health Meets Practice" Learning Center, a dedicated educational destination on Medscape.org. The new center serves as...

Data, Evidence, Education: Tackling the Global Multi‑Trillion‑Dollar Rare Disease Burden

Rare diseases are individually uncommon, yet together they affect an estimated 300 million+ people worldwide and touch the lives of over one billion when families and caregivers are included. For...

#ShortenTheJourney

For the millions of people living with a rare disease, the path to a diagnosis (if ever received) is often a long and frustrating odyssey. This delay is frequently driven...

Why We Must Stop Normalizing the “Pregnancy Itch”

In the world of rare diseases, success is often measured by the speed of diagnosis. However, for women facing rare liver conditions like Intrahepatic Cholestasis of Pregnancy (ICP), the medical...

The Greatest Form of Caring: Medscape’s Commitment to Advancing Cardiovascular Health

A February Focus on the Heart  While February is known as the month of love, it is also National Heart Month, a time for highlighting the importance of cardiovascular health....

AI, Agility, and Connected Impact at Alliance 2026

Join the Medscape team in Atlanta, February 16–19, 2026, as Alliance celebrates 50 years of excellence in continuing education for health professionals. We’re bringing our 3 decades of experience in...

Why Sleep Health is the Missing Link in Women’s Wellness

While obstructive sleep apnea (OSA) affects approximately 32% of US adults—nearly 80 million people—it remains an "epidemic hiding in plain sight". Perhaps most staggering is that 90% of women with...

The Heart and Mouth Connection Every Woman Needs to Know

For decades, modern medicine has treated the mouth and the body as separate entities. But for Dr. Nieca Goldberg, a renowned cardiologist, and Dr. Maria Ryan, Chief Clinical Officer at...