Rare Disease Day
New report identifies stigma as a structural barrier in rare disease
The study finds that healthcare settings are a leading source of stigma for people living with rare conditions
Advertising For Women’s Health: Breaking Taboos and Driving Change
Our strategist Stephanie Goley, MSc, PhD takes a fascinating look at how advertising is breaking down stigmas around areas of women's health such as menstruation and menopause - and helping...
Rare Disease Day 2025 – highlighting recent approvals in the rare disease space
There are more than 7,000 known rare diseases that impact 300 million people globally
Radboud researchers use new method to improve diagnosis of rare diseases
Approximately 7,000 rare diseases collectively impact up to 5.9% of the global population
Clinigen launches ‘What is Possible?’ campaign on Rare Disease Day to accelerate access to medicines
There are over 7,000 rare diseases impacting more than 300 million people globally
Rare disease market access – Launching orphan drugs in secondary markets: the Nordic and MENA regions
Join us live at 1.00pm (GMT)/2.00pm (CET)/8.00am (EST) on Thursday 29th February, to explore rare disease market access challenges and learn more about these high potential markets.
Rare Disease Day 2023 – raising awareness around the world
Around one in 17 people will be affected by a rare disease at some point in their lives
The Need for and Impact of Rare Disease Education
Physicians are often told that when they hear hoofbeats, think horses, not zebras — to look for the most common cause of a patient’s symptoms first. While this advice may...
Medscape Education: Rare Diseases
It's only a few days until #RareDiseaseDay2023 on 28th February. We're taking a patient centered approach, this means understanding their journey so we can better understand how we can help to...
Together Caring for Rare Disease
Medscape Education and Medics4RareDisease are partnering on a Rare Disease Day awareness campaign. The campaign will form part of a series of short programs produced by ITN in collaboration with Genetic Alliance...
Medscape Education and Medics4RareDisease Uncover the Education Gaps in Their Compelling Rare Disease Day Campaign
Medscape Education and Medics4RareDisease are partnering on a Rare Disease Day awareness campaign. The campaign will form part of a series of short programs produced by ITN in collaboration with Genetic Alliance...
Extraordinary lives: advancing change in rare diseases (Part 2)
In support of Rare Disease Day, we're excited to launch part 2 of our video series; Extraordinary lives: advancing change in rare diseases.Why is raising awareness of rare diseases so...