Pharmafile Logo

Rare Disease Day 2021

February 22, 2021 |  

To mark Rare Disease Day 2021 on Sunday 28 February, OPEN Health will be intentionally quiet on all LinkedIn channels from 26 February to 1 March in order not to distract from awareness generated by patient groups.

To mark Rare Disease Day 2021 on Sunday 28 February, OPEN Health will be intentionally quiet on all LinkedIn channels from 26 February to 1 March in order not to distract from awareness generated by patient groups.

In fact, we want to offer our platform to amplify the voices of the rare disease community and we will be sharing Rare Disease Day-related content during this period. So, if you are part of a patient group and would like us to share your posts, please tag #Share4Rare and we will happily share to our network.

We recognise the importance of this day for rare disease patient groups in supporting their communities and raising awareness, and it’s for this reason that OPEN Health is saying “Shhhh” on Rare Disease Day 2021!

If you would like to understand more about our commitment, capabilities and experience in rare disease please contact:

Gavin Jones, Global Advisor, Rare Diseases

This content was provided by OPEN Health

Company Details

 Latest Content from  OPEN Health 

Yurie Oates, Account Director, OPEN Health gives us some Top tips from 5 years of account management on #MedCommsDay

WHAT IS ACCOUNT MANAGEMENT?Account/project managers support the day-to-day running of their account: they are the glue in a team who make sure projects are completed on brief, on time and…

A day in the life of an Associate Publications Director

Eleanor Raynsford, Associate Publications Director, OPEN Health gives us an insight into a day in the life of her role.

Vicky Bramham, Managing Director at OPEN Health PR shares tips on media relations during COVID-19

Vicky speaks with freelance health journalist Jacqui Thornton who gives her expert view on how best to approach media relations during this unprecedented time.

OPEN Health attend EB World Congress—building on momentum and strength in numbers for epidermolysis bullosa

Ben Speller shares his thoughts on the value of disease specific congresses

OPEN Health use PR to support clinical trial recruitment

International Clinical Trials Day finds clinical research in the spotlight like never before, with any news coming from the many studies into potential vaccines and treatments for SARS-CoV-2

OPEN Health | European Congress on Rare Diseases (ECRD) 2020 in 60 seconds

Gavin Jones, Director or Rare Disease, attends the congress to better understand the viewpoints of patient groups, health systems and payers

OPEN Health attend day 2 of the ECRD2020 congress

Gavin Jones is looking forward to sessions on innovation in advanced therapies and working towards equitable access.

OPEN Health continued support for My Name’5 Doddie

Charity fundraising for Motor Neuron Disease

OPEN Health’s latest partnership with Rare Revolution Magazine

Richard Jones introduces our Head of Health Psychology (Dr Sumira Riaz)

OPEN Health CSR Report 2019

Margot Hannah, Partner and Group Managing Director, and CSR lead at OPEN Health shares her thoughts on our latest report.